Multiple Sclerosis Part 3

Well I need to tell every one that having MS. is not the end of the world. I think most people who has has known for a long time that there is SOMETHING WRONG and I was so happy to figure it out.

I have to say Cleveland Clinic is the best hospital. They have one whole building that is called the Melen Center. They do research there and they are so nice and so smart. The local doctors do there best but until they figure out what is going on with you PLEASE go to the clinic first. Other doctors see say several hundred patients. The clinic has seen I don't know probably thousands so it makes since they know more. The also get new meds. first like the Bestrewn was an orphan drug, I hope I am saying that right. That means until it has been on the market for a long time they put your name in a lottery and I guess they drew names to see who got to take the drug. But because I was already going to Cleve I got the medicine right away. And that is very important because when you have a new symptom I can't stress enough to get it treated right away. It could mean the difference between walking and crawling or seeing and only seeing lights and Dark's believe me I have seen it happen. Oh yes do go to the eye doctor the are the first to find MS. sometimes. The eye doctor I went to I kept telling her I was seeing a dirty spot like when I would go shopping for clothes the white ones would have a round dirty spot on them. Know wait a minute I told my self all these clothes can't have a the same dirty spot on them. The doctor told me I was describing a floater but she could not find it. Well one of the many test they gave me at the Cleve Clinic was I think it was called an Evoke eye test. You look in the head monitor at a white screen and there are dots and when every tine you see a little white star you push a hand button. Then at the end it shows you all these little dots on a paper well on the paper there are blank plane areas where there is nothing. Well there were stars in those areas but I could not see them. That means that the nerve in the back of your head could not see the light. Well that was my dirty spot I was seeing That was my Ms. You would think a regular eye doctor would know that but they did not. THAT IS WHY YOU GO TO CLEVE CLINIC. But allot of MS. is found in the eyes first. I do know one person who was having trouble seeing was getting blinder more and more. Finally went to Cleveland and yes she had Ms.

Multiple Sclerosis Part 2

To give you more information that I have, I will start with what medicine has been taken. First Cleveland clinc started with Betaseron and Avonex but later was switched to Propaxone, because my liver enzyme elevation was attributed to the Avonex. Clevland Clinc is very good at adjusting medicine when it is needed. They also do not usually switch with what is working.
Bataseron was the medicine I remember and I was on it for quit a long time. And I was so happy to be lucky enough to be diagnosed when I was. However it took many years for the doctors to finally figure it out. I did tell them what I had I had talked to many of my friends who were nurses and told them all my symptoms and the said are you sure you do not have MS. I had some doctors tell me oh know you are to young to have ms. I originally went Cleveland for my high blood pressure so they tried to get that under control. Finally my family doctor tested me with a MRI test they told me to see if I had a tumor on the 8Th nerve of my left ear. I think my doctor kind of knew what I had but you have to get the Instance companies to pay for the test. Anyway sure enough the test came back that I had possible MS. Well believe it or not I was so happy because after all these years I knew they had found the answer. I will tell you the rest of my story in MS #3

Multiple Sclerosis and ME

I was diagnosed with MS 15 years ago and I am doing well. I believe I have had it for the past 40 years or more and nobody was able to diagnosis it.
At 16 I noticed that I was dragging my left leg while trying to ski, and I have been tired ALL my life. Also while I was 16 I had a very severe case of step throat I also had previous cases of scarlatina. I believe that the MS started possibly could have started back when I first got scarlatina when I was in first grade. I know that my entire childhood I was tired, more tired than all my friends.
I was diagnosed at the age of 40 by the Cleveland Clinic to have MS. My symptoms at the time were, High blood pressure, memory problems, weakness on my left side, plus many more.
I have gone through many types of medicine, first with shots of BETASERON this I had to do every other night. I was very fortunate that because I was associated with the Cleveland Clinic doctors, I did not have to be put on the waiting list for the Betaseron and was able to receive it right away. When it first came out the medicine was on a lottery system and not all were able to get it, they were put on the waiting list.

This is My First Post.

This is my first step into the wonderful world of blogging.
I was outside today looking at the sky and it had the most wonderful blue hue to it. The clouds were white and puffy.

Then my friend told me to get into blogging.

Let me first tell you something about my self.
I am married and live my life to the fullest. I love to travel, but my favorite hobby is China painting.

I have China painted for the last 25 years. My Mother is the one that got me introduced to the world of painting. It is very relaxing and I can get lost into what ever I am working on. It is wonderful for the diet, I forget to eat when I am painting.